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Premature Babies
sari2008 Offline
#1 Posted : Wednesday, 20 August 2008 6:26:14 AM(UTC)

Rank: Eggling

Posts: 18

Hi everyone,
My baby girl Alivia was born at 29 weeks, 3 days short of 30 weeks. I had an emergency c-section under a general. I had a concealed APH which is internal bleeding into the placenta. She was born on the 5th March 08. She came home on the 5th May, after 8 weeks in hospital. She is now a healthy 5.3kgs, she was 1.1kgs when she was born.
Are there anyother mums out there that had premmie babies? I feel like I am alone.... :(
lix Offline
#2 Posted : Wednesday, 20 August 2008 11:24:12 AM(UTC)

Rank: Lucky Duck

Posts: 1,007

Hi Sari,
Welcome to Mother and Baby. My Lola was born at 36wks, not as early as Alivia but still considered prem. Sounds like she is doing really well now, i'm sure your a great mumma. You will find lots of support and advice on here and i''m sure there are many who will share a similar story.
~Lisa~ Offline
#3 Posted : Wednesday, 20 August 2008 12:35:53 PM(UTC)


Rank: Queen of the Quackery

Posts: 3,893
Location: Perth, WA

My last 2 were prems, not as early as your little one. The first was 36 weeks and the second was 35 weeks. They are keeping a close eye on me during this pregnancy and my midwife has told me to become a couch potato to try and avoid it happening again.

Glad to hear Alivia is doing so well now. :D You are not alone you will find lots of support on here.
♥ DD1~15 (FT) ♥ DS1 ~ 14(FT) ♥ DS2 ~ 1o(FT) ♥
♥ DS3 ~ 8 (36+1w 2830g) ♥ DD2 ~ 2.5 (35w 2210g) ♥ DD3 ~ 20m (28+1w 945g) ♥ DS4 ~ 7m (25w 920g) ♥
Robyn Offline
#4 Posted : Wednesday, 20 August 2008 2:12:42 PM(UTC)

Rank: Plumage Princess

Posts: 1,391
Location: Tamworth NSW

Hey there - there is a lady in the due in august forum called feeona who had her little one very early - you could try talking to her???

Well done too and congrats :)




2 Much Loved and Missed Little Angels watching over me..
Angel #1 - Missed Miscarriage November 2009 - 12 weeks - a little girl
Angel #2 - Natural Miscarriage April 2010 - 7 weeks
~tara~ Offline
#5 Posted : Thursday, 21 August 2008 4:11:57 PM(UTC)

Rank: Moderator

Posts: 10,282
Location: Innaloo, WA

Hi Sari
Welcome to M & B.
My son Cole was born the same day I was 36 weeks. Not as early as Alivia but I do understand how you feel.
She sounds like shes growing well. Cole was 5.7kgs at about what age Alivia is now. He is still small for his age but he is doing well and has met most his milestones at the same age as other bubs.
Private message me if you ever want to chat :D
Mama to 3 gorgeous boys

Cole ~ 18 May, 2007
Cooper ~ 17 August, 2009
Hudson ~ 25 February, 2011
Milicasmummy Offline
#6 Posted : Monday, 25 August 2008 1:42:16 AM(UTC)


Rank: Duckling

Posts: 511
Location: Sunbury, Victoria

Hi Sara2008,
This is Feeona from the August thread.
Just noticed your Premature Babies thread and wanted to say hi and welcome.
I had our daughter at 26weeks 2days (14weeks prem) on 7th May 2008 (EDD 11th August 2008) - she is in Royal Woman's Hospital NICU still and "hopefully" on her way home in the next couple of weeks..... if you like you can PM me and we can chat more about our prem babies, as you are not alone there are websites and people that can help you thru the tough times.
look forward to hearing from you and hope that you and Alivia are doing well :D :D :D



Before you were conceived I wanted you, before you were born I loved you, before you were an hour old I would die for you. This is the miracle of life
sari2008 Offline
#7 Posted : Monday, 25 August 2008 3:09:31 AM(UTC)

Rank: Eggling

Posts: 18

Hi Feeona,

It is so nice to hear from someone who knows what it is like to have a premmie baby..
What was the reason why your daughter was a premmie? I hope she comes home soon, it is an amazing feeling when you actually get her home but it is daunting too as I got very used to having doctors and nurses around to help or answer my many many questions.
I found NICU a very scary but inspiring place. What tiny babies can endure is truly amazing, I think Alivia is much stronger than alot of adults I know and I'm sure your daughter is too.
I look forward to chatting to you..... :)
Milicasmummy Offline
#8 Posted : Monday, 25 August 2008 10:32:49 AM(UTC)


Rank: Duckling

Posts: 511
Location: Sunbury, Victoria

Hi Sari,
well, long story..... Milica was born at 26weeks 2days (7th May) due to me having severe pre-eclampsia and very high blood pressure (220/120 which isn't good). Basically under my obs and in April went to be checked out, put on 7kg in a month :oops: and he told me to loose it fast, I am on the rather biggish side and he didn't want me putting on anymore weight than I had too... so put me on a no carbs diet which I followed. On 3rd May (one week prior to going back to obs) thought I would weigh myself to see how I was going, shock put on another 4kg (even being on the strict no carbs diet!!!) so thought obs would kill me I would go to my GP and get checked out. I believed that I had excess fluid as I hadn't changed body shape much and was pretty much still fitting into all my current clothes. GP on the Monday said that I was overweight and that he didn't think it was excess fluid he believed that I was "closet eating" and not admitting to it :evil: :evil: :evil: Suggested to him about pre-eclampsia and he said I was too early to develop it... took BP and is was 200/130 and a urine sample showed "protein" and he sent me home! Did the usual that night, took the dog for a walk (45mins) and had tea. 11pm that night up and out of bed in excrutiating pain couldn't sleep, lay down, sit anything the only thing was leaning on the kitchen bench - was vomitting and pain in my abdomen and going between my shoulder blades and down my back. Branko (DH) ended up taking me to Werribee hospital at 6am upon which they told me that I was very high risk, they stabilised me and transferred me to the Royal Woman's Hospital where I was told our daughter was going to be born that day (Tuesday), however, somehow we stablized even more BUT things turned worse early hours of Wednesday and to save both of us she had to be born. Branko is very lucky to have one if not both of us here today.
Milica was born weighing 575gms and 21cm long (enclosing some links re: photos) and took her 1st breath by herself when born (drs said she was a fighter from the start). 3 and half months later we are still at RWH and in NICU - Milica has cronic lung disease and intrabactor which she will have all her life, currently on nasal prongs and doing rather well... we breath air which has 21% oxygen in it, and she is in about 24-25% oxygen thru the nasal prongs. Weighed her yesterday and she is 3.110kg OR 6lb 9oz which is a long way from the 575gms she was when born.
I truely believe that she is our "miracle" girl as I wasn't meant to have children, got told 13yrs ago would never be able to have kids, so Branko and I were set on no children and raising dogs as kids instead, imagine the shock 2weeks prior to xmas last year finding out a baby is on the way!!! so that is some of my story shortened but still lengthy..... how are you and Alivia doing?? hope to hear from you soon. take care.

photos:
Milica 18mins old: http://i268.photobucket.com/albums/jj4/ ... 508149.jpg
Milica one day old: http://i268.photobucket.com/albums/jj4/ ... 8425pm.jpg
Milica in her bath: http://i268.photobucket.com/albums/jj4/ ... 081207.jpg
Milica looking cute: http://i268.photobucket.com/albums/jj4/ ... 1202pm.jpg




Before you were conceived I wanted you, before you were born I loved you, before you were an hour old I would die for you. This is the miracle of life
Lolly Offline
#9 Posted : Monday, 25 August 2008 10:39:33 AM(UTC)


Rank: Queen of the Quackery

Posts: 3,520
Location: Tahmoor,nsw

theres so many mums of premmie babies i might pm a moderator to get a real thread for us all

Laura-24
John-26



Lolly Offline
#10 Posted : Monday, 25 August 2008 10:44:04 AM(UTC)


Rank: Queen of the Quackery

Posts: 3,520
Location: Tahmoor,nsw

done hopefully they will answer out prayers!

Laura-24
John-26



Milicasmummy Offline
#11 Posted : Tuesday, 26 August 2008 2:02:29 AM(UTC)


Rank: Duckling

Posts: 511
Location: Sunbury, Victoria

lauramac,
I PM Bubbles re the thread, she is going to look into.... so hopefully a thread will start soon.
cheers,



Before you were conceived I wanted you, before you were born I loved you, before you were an hour old I would die for you. This is the miracle of life
Lolly Offline
#12 Posted : Tuesday, 26 August 2008 3:52:51 AM(UTC)


Rank: Queen of the Quackery

Posts: 3,520
Location: Tahmoor,nsw

i pm'd heidi too so i think they are going to get one

Laura-24
John-26



~tara~ Offline
#13 Posted : Tuesday, 26 August 2008 9:24:12 AM(UTC)

Rank: Moderator

Posts: 10,282
Location: Innaloo, WA

Hi girls - it's off topic from Saris post, but i did start a thread in the Off Topic section too about starting up a section for us. Hopefully with enough of us wanting it they will do it!!!
Mama to 3 gorgeous boys

Cole ~ 18 May, 2007
Cooper ~ 17 August, 2009
Hudson ~ 25 February, 2011
sari2008 Offline
#14 Posted : Tuesday, 26 August 2008 11:41:09 AM(UTC)

Rank: Eggling

Posts: 18

Afternoon......Feeona your story really bought tears to my eyes.....here is my story....
On 3rd March I woke up not feeling too well, David (dp) said that I was pale and I felt like I had gastro. I went to work and ended up coming home at lunchtime cause I was feeling worse. I noticed all day that bubs had not moved and I thought to myself that she might just to asleep or resting. I bascially stayed on the couch for the rest of the day. Tuesday morning I woke up feeling the same as I did the day before, but still no movement from bubs, I still went to work and actually worked all day. Wednesday with still no movement from bubs I started to worry. I went to work and called my obs, he said to ring Cabrini (where I was booked in for labour...) for foetal monitoring. I went there as soon as my legs could move me, thank god I was working in the city so the taxi ride only took 10 mins. I had monitoring for 4 hours, during this time I started to get pain down my right side of my tummy, sweating and nausea. David and my mum came to hospital to be with me. My obs came to see me and ordered for me to be sent straight to Monash as they cannot delivier babies under 25 weeks there....it was baout this time that I knew something was wrong.....I was rushed to Monash by ambulance with the sirens and lights going, my mum was with me and David followed the best he could....I was admitted at Monash at 3.45pm and had Alivia at 4.15pm. I had a general anesthetic and a c-section, so I missed it all, which breaks my heart when I think about it now. We were told that the baby had to come out as her heart beat was slowing down rapidly and my pain was increasing like crazy. Alivia was born with the cord around her neck twice which is very rare apparently. She was born at 1.1kg and 38 cms long. She was at Monash NICU for 2 weeks and 6 weeks in SCN (special care nursery), then 2 weeks at the nursey at Cabrini as she was one of the 'healthier' babies that could be moved to another hospital. We were told just before she was about to come home what actually happened, I had an concealed APH, which is a hemmorahge (sorry I can't spell it correctly!). I was internally bleeding into the plancenta and Alivia was living in it which is life threating for her and me. If I was to leave it any longer - even an hour, both of us could not be here now. The docs told me that I have a 50/50 chance of it happening again if we have another baby, so I am soooo scared to have another one, but I am blessed to have my little girl with me.
So that is my story, sorry it's a little bit long winded....Alivia was due on the 17th May 2008, she actually came home earlier than her due date...she came home on the 5th May 2008. She now weighs 5.2kgs. People keep asking me how old she is and when I say that she is nearly 6 months old they look at me in horror, so I just say that she was 10 weeks prem. Sometimes reactions are sympathy others are shocked.
She is still in new born clothes from Pumpkin Patch and 000 bonds wondersuits.
I still remember so clearly her in NICU with CPAP on (I am sure that you know what that is), nasal gastric tubes, IV's in her tiny arms and legs and under the UV for days and days - it honestly felt like it was never going to end.
She has a heart murmor, we thought she could be deaf in one ear but that seems to have sorted itself out, strawberry birth mark on her leg and a birth mark on the side of her face (near her hair line)that will need to be cut out when she gets older.
Milica is a gorgeous name, she was really a tiny tot, but they are amazing and very strong. Alivia is a very strong determined little girl that always has to have her own way all the time - I have been told that is a premmie trait so beware!!
I would love to show you some early photos and now photos but I am not sure how to attach them!!
Take care.....Sari
Milicasmummy Offline
#15 Posted : Tuesday, 26 August 2008 11:55:37 AM(UTC)


Rank: Duckling

Posts: 511
Location: Sunbury, Victoria

Sari,
WOW now i am in tears...... you and me have similar stories and both in Melbourne!!! I pressume you meant 17th April not May if she came home on 5th May?? correct me if i am wrong..... photo wise do you have photobucket? that is the easiest way I have found to add photo links for others in the forums to see the pics etc. Milica is a lovely name meaning "gracious" and yes Milica too has her own way on things and lets you know what she wants and when she wants it. Had chat with the drs today and they reckon she will "definately" be home by grandfinal weekend - so unfortunately I am still looking at another month of travelling to the hospital each day :? We too are in SCU and just adore the staff and drs - can't fault them at all..... had a neonatal development assessment today and all good, we are allowed to take in rocker tomorrow to have her placed in so she sees other things rather than the roof all the time, which i think is just great and also the drs said that we are allowed to take her in the pram (still on oxygen) around the hospital :D :D :D :D :D :D :D can't wait to do that!!! Sorry to hear about Alivia's tumour and birth marks, Milica "at this stage" only has the chronic lung disease and intrabactor, hearing, eyes etc are all perfect which is great. In saying that the only thing that is wrong is her nose, when she was on CPAP her septum (middle bit of your nose between the nostrils) broke down (as only made of cartlidge) so in all her septum is 1/2 way up her nose so too look at her she looks like she has one big nostril. She is able to have it fixed with plastic surgery, however, the plastic surgeons from RCH said she would have to be 4-5 yrs old prior to surgery, SO yearly visits to the childrens hospital to get that looked at, BUT thankfully it is covered by the hospital as it was entirely their fault it happened. Milica ended up on DUMMY CPAP (which is a dummy with hole cut in end for CPAP tube to go thru) 24hrs a day for 2months with her mouth open, more thing... anyway enough rambling, do hope you are well and would love to keep chatting....



Before you were conceived I wanted you, before you were born I loved you, before you were an hour old I would die for you. This is the miracle of life
sari2008 Offline
#16 Posted : Tuesday, 26 August 2008 1:15:30 PM(UTC)

Rank: Eggling

Posts: 18

Hey Feeona,
Alivia has a heart murmor, not a tumor...but that's ok. That is great about the rocker and pram. We did not get to do that, we once took her to the parents lounge in cabrini but we never ventured out the nursery besides that. I am so thrilled for you. Do you have prepare your home for her arrival?
Alivia had an infection about 2 weeks after she was born, we were told that the accept babies with 5% infection level, she had 75%. So she was a very sick little girl at one stage. She was on anti-biotics for 2 weeks, back in NICU and back on CPAP. Thankfully, her levels dropped but she was very closely monitored. We also had alot of brady's and d-sats - do you know what they are?? I remember a day where she was having brady after brady....I was in tears all day and never left her side.....
I used to talk to her alot and read to her. I used to calm her down. I used to love kangaroo cuddles too...they were the best.
Monash nursery is amazing, I never realised how many premmie babies there are...at one stage the whole nursery was so full that there were babies hooked up to monitors in the nurses store room. I think they were also flying bub's interstate too.
Alivia came home on the 5th May....I was due on the 17th May.
I used to call the nursery in the morning when I woke up, then went in with the EBM with my mum till about lunch, then go home, express, ring again, express, go in with David for a few hours, come home, express, call again than sleep. I did that the whole time she was at Monash, it really used to wear me down.
I have just recently been diagnosed with having reactive depression - it is like a delayed reponse to what happened with Alivia and what could of happened. I did try to go back to work just for 2 days a week, but my shrink advised me to give it up and be a full time mum to Alivia. So this is my first week being a full time mummy, and i love it. I go to the shrink every week for a total of 6 weeks, I have been once so far and she seems really nice and completley understands why I have panic attacks and break down in tears.....I am sure that you understand.
Milicasmummy Offline
#17 Posted : Tuesday, 26 August 2008 1:27:25 PM(UTC)


Rank: Duckling

Posts: 511
Location: Sunbury, Victoria

Sari,
firstly sorry about the tumor /mumor bit :oops: :oops: :oops: :oops: feel really bad now :cry: :cry:
I can totally understand about the panic attacks and break down with tears, I too have it at times, not as bad now as I did when Milica was on CPAP. Milica has had her share of infections/viruses and we almost lost her in July, we spent 16hrs one day in there from 5.30am to 10pm just being by her side while she was in the incubator and on CPAP. Milica has definately come along way since the early days, was looking thru her photos last night, and she was just sooooooo tiny, it still seems sureal to me that she is here, lettle own she is ours and coming home "hopefully" in a months time!!!!
For me I of course, haven't had the opportunity to go back to work, my days is similar to what you had........ call hospital 1st moment i wake up, express, have shower/breakfast, into hospital with EBM, express, feed Milica with bottle, cuddles, lunch, express, feed Milica with bottle, cuddles, leave to come home (about 3ish) express, call hospital, prepare dinner, express, call hospital, express, call hospital, express and bed..... that is that daily routine and they wonder why we go crazy!!!!! Sounds like you have a great shrink and hope that all works out for you, however, in saying that if you want someone to VENT to I am here too..... Just wondering if I will "breakdown" one day??? I just keep going however, feel that I will one day just break and cry and cry and cry.... more that likely a day when she is home and realisation kicks in!!!!!



Before you were conceived I wanted you, before you were born I loved you, before you were an hour old I would die for you. This is the miracle of life
sari2008 Offline
#18 Posted : Tuesday, 26 August 2008 3:41:48 PM(UTC)

Rank: Eggling

Posts: 18

That is ok Feeona, it's ok about the tumor/murmor thing, no sweat. :D
It is amazing when I look back at the days when Alivia was in hospital and wonder how I got through it all.....I think I did cause it had to be done and the fact I felt it owed it to her. I still feel guilty for what she went through, I know that I could not do anything about it but I still felt for her, being apart from me and David. It is hard to explain.
I remember being told "you can take her home by the end of the week"...I was in shock, did not have anything ready for her as I did not want to set it up, so we frantically did her room and tried to get as much as sleep as possible!!!!! Oh yeah, sleep now while you can...!! Alivia is just now sleeping through the night, after being home for 3 months! :shock:
We did not tell anyone when she was coming home either, we suprised all our parents and friends. My mum was in tears when we called them and told to drop in by. It felt like the end of one journey and the begining of another.
We have regualr check ups at the maternal health care clinic and monthly visits to her baby doctor, she was on iron ferris (liquid iron) and that only stopped about a month ago thank goodness and is on pentavite, which is a liquid multi vitamin, she will be on that till she is 1.
I'm so glad to finally have met someone in my siutation, I tried to talk to the mums in the nursery but they are that focused on their bubs that it is was near impossible to have a conversation with them... :?
Anyway Alivia is due her last bottle for the day, so good night, take care and chat soon. :D
MrsB Offline
#19 Posted : Tuesday, 26 August 2008 4:08:27 PM(UTC)


Rank: Queen of the Quackery

Posts: 6,081
Location: In a galaxy far far away ...

Could I just but in. As someone who has never had a prem baby, in fact quite the opposite. I think that it would be a wonderful thing to have a prem section as, it isn't exactly something you plan. And if you do find yourself in hospital, with access to a the internet, it would be a good network to have IYKWIM. Anyway, not my business, but that was my 2c worth. :oops:



Lolly Offline
#20 Posted : Wednesday, 27 August 2008 5:34:26 AM(UTC)


Rank: Queen of the Quackery

Posts: 3,520
Location: Tahmoor,nsw

well were just waiting 4 one now

Laura-24
John-26



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